Australian Institute of Health and Welfare

Australian Cancer Database
Description: The Australian Cancer Database (ACD) is a data collection of all primary, malignant cancers diagnosed in Australia since 1982, except BCC and SCC of the skin. Data from the ACD are used to report on national cancer statistics such as incidence, trends, projections, survival and prevalence.

The ACD includes the following details in line with the agreed minimum data set but is not limited to: name; sex; date of birth; Indigenous status; country of birth; and date, age and cancer details for each diagnosis.

The ACD is compiled at the AIHW from cancer data provided by state and territory cancer registries through the Australasian Association of Cancer Registries. These population-based cancer registries receive information on cancer diagnoses from a variety of sources, such as: hospitals; pathology laboratories; radiotherapy centres; and registries of births, deaths and marriages.

Data collection and coding practices are standardised when state and territory data are compiled into a single, national database.
Date Range: The Australian Cancer Database (ACD) is a data collection of all primary, malignant cancers diagnosed in Australia since 1982. (Note: (i) national data on non-melanoma skin cancers, besides BCC and SCC, are complete from 2001 only and (ii) data on myelodysplastic syndromes and some myeloproliferative cancers are complete from 2003 only.)
Custodian: Unit Head, Cancer & Screening Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Available
Meta Data: Available
Data Quality Statement: Available

 

Medicare Benefits Schedule (MBS)
Description: The Medicare Program (‘Medicare’) provides access to medical and hospital services for all Australian residents and certain categories of visitors to Australia. It includes a current and historical record of all medical and hospital services that are subsidised by the Government under the Medicare Benefits Schedule (MBS). The information is used for essential analysis of the MBS, for example investigating service use and costs.
Date Range: February 1984 to present
Custodian: Assistant Secretary, Medicare Financing and Listing Branch, Medical Benefits Division, Commonwealth Department of Health
Jurisdiction: National
Data Linkage Unit: AIHW, ABS
Variable list: Available
Meta Data: Available
Data Quality Statement: Unavailable

 

Pharmaceutical Benefits Schedule (PBS)
Description: The Pharmaceutical Benefits Scheme data system (PBDS) comprises:
  • a current and historical record of all prescriptions that are subsidised by the Government under the Pharmaceutical Benefits Scheme (PBS) - data from May 2002 to the present; and
  • a current and historical record of PBS prescriptions that are priced below the patient co-payment and are not subsidised (co-payment prescriptions) – data from April 2012 to the present.
The information is used for essential analysis of the PBS, including modelling and monitoring of the budget process, monitoring of Community Pharmacy Agreements and implementation/monitoring of risk sharing arrangements with drug companies.

Date Range: From May 2002 to the present for subsidised prescriptions
From April 2012 to the present for co-payment prescriptions
Custodian: Assistant Secretary, Pharmaceutical Policy Branch, Pharmaceutical Benefits Division, Commonwealth Department of Health
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Contact PBSstats@health.gov.au
Meta Data: Available
Data Quality Statement: Unavailable

 

National Death Index
Description: The National Death Index (NDI) is a database, housed at the Australian Institute of Health and Welfare, which contains records of all deaths occurring in Australia since 1980. The Index is designed to facilitate the conduct of epidemiological studies and its use is strictly confined to medical research.

The NDI database comprises the following variables for each deceased person: name, date of birth (or estimated year of birth), age at death, sex, date of death, State/Territory of registration, registration number. Cause of death information in a coded form is also available. For records to 1996, only the code for underlying cause of death is available. For records from 1997, the codes for the underlying cause of death and all other causes of death mentioned on the death certificate are available.

Fact of death is updated monthly (usually by midway through the subsequent month). In general, there is a period of around 18 months until AIHW has access to cause of death data of recent deaths (e.g.cause of death data for deaths registered in 2013 may only become available mid 2015 or later).

Data in the National Death Index are obtained from the Registrars of Births, Deaths and Marriages in each State and Territory.
Date Range: Fact of death 1980 to current. Causes of deaths 1997 to 2015
Data Custodian: Unit Head, Data Linkage Unit
Jurisdiction: National
Data Linkage Unit: AIHW
Variable list: Available
Meta Data: Dataset details - Available; Data element specifications - Available
Data Quality Statement: Available