The PHRN collaboration has involved six state/territory data linkage units in Western Australia, New South Wales, South Australia/Northern Territory, Tasmania, Queensland and Victoria as well as two National Linkage Units, namely the Centre for Data Linkage based in Western Australia and the Australian Institute of Health and Welfare.
|Data Linkage Unit
|Centre for Data Linkage
||Curtin University, WA
|Data Linkage Branch
||Department of Health, WA
||University of South Australia
||South Australia and Northern Territory
||Ministry of Health, NSW
||New South Wales and Australian Capital Territory
|Centre for Victorian Data Linkage
||Department of Health and Human Services, Vic
|Tasmanian Data Linkage Unit
||University of Tasmania
|Data Linkage Queensland (DLQ)
National Data Linkage Units
Centre for Data Linkage
The Centre for Data Linkage (CDL) was established in 2009 and is hosted by the Curtin Health Innovation Research Institute (CHIRI) at Curtin University in Western Australia. It is one of the two national data linkage units within the PHRN. The key role of CDL is to establish a secure data linkage facility that facilitates linkage between jurisdictional datasets, and between these datasets and research datasets for the purpose of health and health related research projects. The CDL does not hold intact datasets, but creates linkage keys for the demographic data that has been separated from the remainder of each dataset. The CDL does not hold clinical or health service data which are retained in administrative datasets by the primary data custodians or by individual researchers. The Centre for Data Linkage (CDL) is an integral part of the PHRN and is the main data linkage facility for national projects run under the PHRN collaboration. > Read more... Meet the the CDL Team
Linkage Quality Report: Available
Australian Institute of Health and Welfare
The AIHW joined the PHRN in 2011 as one of the two national data linkage units. The AIHW is an accredited Commonwealth Integrating Authority that facilitates the development and analysis of data in order to support whole-of-government and whole-of-life approaches to policy. An accredited Integrating Authority has the authority to link data within and between Commonwealth and state/territory data collections. Accreditation of AIHW provides an avenue for Australian researchers to gain access to Commonwealth data for linked data research.
Regional Data Linkage Units
Centre for Health Record Linkage
The Centre for Health Record Linkage (CHeReL) was established in 2006 as a dedicated data linkage unit for NSW and ACT and is managed by the NSW Ministry of Health. CHeReL creates and sustains a record linkage infrastructure for the health and human services sectors, and provides access to these resources to bona fide researchers and health planners and policy makers. CHeReL provides advice and data linkage services on request and is building a system of links within and between core health and health-related datasets (www.cherel.org.au/master-linkage-key).
Linkage Quality Report: Available
Data Linkage Queensland
Data Linkage Queensland (DLQ) is located within the Health Statistics Unit at the Queensland Department of Health. The RLG is responsible for data linkage services. Please see the Queensland Data Linkage Framework which documents the principles, structure and processes of the RLG.
SA-NT DataLink was established in 2009 to create and maintain a record linkage system for health and human services in South Australia and the Northern Territory. SA-NT DataLink is the operational body for SA-NT Data Linkage Consortium whose members include the Northern Territory government, and numerous SA government departments, the three SA-based universities, the South Australian Health and Medical Research Institute (SAHMRI), the Cancer Council SA and the Health Consumer Alliance of SA. The Data Linkage Unit is staffed by SA Health employees who perform the de-identification and high quality linkage, supporting research, policy development, service planning and evaluation.
Tasmanian Data Linkage Unit
The Tasmanian Data Linkage Unit (TDLU) is a collaborative project of the Department of Health and Human Services (DHHS) and the Menzies Research Institute Tasmania (MRI). DHHS is the lead agency, outsourcing the operation of the unit to the MRI. The TDLU is the Tasmanian branch of the PHRN.
Centre for Victorian Data Linkage
The Centre for Victorian Data Linkage is the Victorian state node of the Population Health Research Network (PHRN). In addition to funding received under National Collaborative Research Infrastructure Strategy, the Centre is also supported by the Victorian Government Department of State Development, Business and Innovation and the Victorian Government Department of Health and Human Services. It is located within the Victorian Department of Health and Human Services. The aims of the Centre are to:
- Provide population wide linked data to researchers while adhering to Victorian privacy principles
- Build skills in and promote research using linked data in Victoria
- Create opportunities for Victorian researchers to undertake innovative, world class research using linkable data drawn from existing datasets.
Western Australian Data Linkage Branch
For more information about the Western Australian Data Linkage Branch, please visit their website.